One of Maddy's issues is processing situations and problem solving. We take for granted that we and those around us know what to do when things happen. For Madeline this is a learned behavior and that means lots of drama/trauma when there does not need to be.
Here is a good example of what I am talking about.
Maddy was taking a shower and she was supposed to call me when she was ready for me to dry and straighten her hair. I am doing random house things, I hear her get out of the shower and assume she is doing her after shower routine.
A few minutes later I hear her screaming for me. This is not a calling out my name, this is a fearful scream. Immediately I assume she is about to have a seizure, so I run to my bathroom full speed. As I round the corner, getting ready to deal with seizure I see Maddy holding a bottle of Diet Coke that is fizzy and spewing from the top.
She dropped her Diet Coke and instead of picking it up and leaving it in one place she panicked. All she knew what that Mom had to fix this. So she ran around in my bathroom and bedroom spreading Diet Coke all over the place.
I have to be careful when things like this happen because I need to teach her how to react appropriately. She was upset because she was scared and did not know what to do, so I have to be calm and assure her that I am not mad. Once I have her calm I can then explain what she should have done and then clean up the mess.
She did help mop the floor and now knows what to do when she drops her drink. Let's just hope she remembers.
Wednesday, July 29, 2009
Tuesday, July 28, 2009
I got nuttin
I have not been on the blogging spree that I was earlier this month. I will blame it on real life shenanigans. So here is some randomness until I feel inspired to post again.
Maddy is great, she is wonderful and happy. We have lots of plans and we think she might have made an honest to goodness friend with a kiddo her age.
My house hates me. I try to love it, I try to keep it nice and clean and we are constantly improving it. The house repays us by backing up the AC drain and ruining walls and ceilings and giving us the pleasure of dealing with insurance. Ugh...
I am making great progress on the Letter of Intent and I am very pleased with the amount of information and detail I will be providing. I can see the light at the end of the tunnel on this project.
My third cousin once removed (I think I figured it out correctly) was in a car wreck this weekend. It is bad, she will have a very long recovery. I pray for her and her family. I also was reminded that we need to say our words carefully for we never know when bad things can happen. I will be praying for them and if you have a spare second toss some positive thoughts their way.
My dog has developed a bump on his head, looks like a mole. He acts just fine, but I bet we take him to the Vet anyway..
I guess that is all for now...hope everyone is having a good week!
Maddy is great, she is wonderful and happy. We have lots of plans and we think she might have made an honest to goodness friend with a kiddo her age.
My house hates me. I try to love it, I try to keep it nice and clean and we are constantly improving it. The house repays us by backing up the AC drain and ruining walls and ceilings and giving us the pleasure of dealing with insurance. Ugh...
I am making great progress on the Letter of Intent and I am very pleased with the amount of information and detail I will be providing. I can see the light at the end of the tunnel on this project.
My third cousin once removed (I think I figured it out correctly) was in a car wreck this weekend. It is bad, she will have a very long recovery. I pray for her and her family. I also was reminded that we need to say our words carefully for we never know when bad things can happen. I will be praying for them and if you have a spare second toss some positive thoughts their way.
My dog has developed a bump on his head, looks like a mole. He acts just fine, but I bet we take him to the Vet anyway..
I guess that is all for now...hope everyone is having a good week!
Wednesday, July 22, 2009
Remember When Wednesday
Just a few memories from the good ole days!
1. Remember when you got things in the mail. The real mail, birthday cards, packages with presents on holidays. You would save up labels from cereal boxes to get toys in the mail. You had at least one friend who had a pen pal from a really cool place.
2. Polaroid cameras were so cool when they came out. You could have a picture immediately!
3. When you wanted to talk to a friend you either called them on the phone or you walked/biked to their house. When you were at their house you interacted with their entire family and you did whatever their parents said.
4. Speaking of phones, they were attached to the wall and you had to dial the number, push button phones were amazing when they came out. If you lived way out in the country you had party lines, so you had to make sure none of your neighbors were on the phone before you could use it.
5. You had a record player and if you listened really, really carefully you could hear the secret messages when you played the record backwards!
Can't wait to hear what you remember/miss from the good ole days!
1. Remember when you got things in the mail. The real mail, birthday cards, packages with presents on holidays. You would save up labels from cereal boxes to get toys in the mail. You had at least one friend who had a pen pal from a really cool place.
2. Polaroid cameras were so cool when they came out. You could have a picture immediately!
3. When you wanted to talk to a friend you either called them on the phone or you walked/biked to their house. When you were at their house you interacted with their entire family and you did whatever their parents said.
4. Speaking of phones, they were attached to the wall and you had to dial the number, push button phones were amazing when they came out. If you lived way out in the country you had party lines, so you had to make sure none of your neighbors were on the phone before you could use it.
5. You had a record player and if you listened really, really carefully you could hear the secret messages when you played the record backwards!
Can't wait to hear what you remember/miss from the good ole days!
Monday, July 20, 2009
She WILL have her way
There are times when Maddy is so much like Mark it makes me smile. I am not wired the way they are. Typically when I am given the answer "no" with a logical reason I just move on. Not those two, if they will pursue it until they achieve their goals.
Maddy is very, very much into Twilight and the entire series. She has just about every piece of Twilight merchandise there is. She will spend hours (truly hours) scouring e-bay and all the Twilight sites for something that she just might need.
When I was in Vegas with my Mom her Grandmom took her out shopping and they purchased a good amount of Twilight stuff. While in Vegas I could not find much for Maddy as I had been there just a few months before so I also took her to Hot Topic and both the few things she still wanted. As Maddy is showing Mark all her new Twilight stuff he declared a ban on all things Twilight. He stated that she had enough and there would be nothing new purchased. He and I both know that in November with New Moon coming out it will cost us a bit more than just a movie ticket to see the show.
A few days later Maddy brought up the fact again that she needs a new mouse pad for her computer. The one she has is very old but still works. Big surprise, there is an Edward mouse pad she wants from E-bay. I went to Amazon to look there for one and she of course did not like any of those. Every Saturday she has a list for Mark of things to do for her I-Pod and I told her to put a new mouse pad on that list and we would talk about it over the weekend.
Maddy is not one to wait when she wants something so when Mark got home she told him about the mouse pad she wanted. When he told her no that he would buy her a good decent mouse pad, she was not happy. A couple of days later when Mark arrived home from work she brought down the mouse pad she was using. It had a picture of Mickey Mouse on it and she loudly stated to him that she had a mouse pad with a picture on it and that mouse pad worked just fine. She did not understand why she could not have a new mouse pad with a different picture on it.
The next day Mark ordered the new mouse pad with a picture of Edward on it. The girl is good..what can I say!
Maddy is very, very much into Twilight and the entire series. She has just about every piece of Twilight merchandise there is. She will spend hours (truly hours) scouring e-bay and all the Twilight sites for something that she just might need.
When I was in Vegas with my Mom her Grandmom took her out shopping and they purchased a good amount of Twilight stuff. While in Vegas I could not find much for Maddy as I had been there just a few months before so I also took her to Hot Topic and both the few things she still wanted. As Maddy is showing Mark all her new Twilight stuff he declared a ban on all things Twilight. He stated that she had enough and there would be nothing new purchased. He and I both know that in November with New Moon coming out it will cost us a bit more than just a movie ticket to see the show.
A few days later Maddy brought up the fact again that she needs a new mouse pad for her computer. The one she has is very old but still works. Big surprise, there is an Edward mouse pad she wants from E-bay. I went to Amazon to look there for one and she of course did not like any of those. Every Saturday she has a list for Mark of things to do for her I-Pod and I told her to put a new mouse pad on that list and we would talk about it over the weekend.
Maddy is not one to wait when she wants something so when Mark got home she told him about the mouse pad she wanted. When he told her no that he would buy her a good decent mouse pad, she was not happy. A couple of days later when Mark arrived home from work she brought down the mouse pad she was using. It had a picture of Mickey Mouse on it and she loudly stated to him that she had a mouse pad with a picture on it and that mouse pad worked just fine. She did not understand why she could not have a new mouse pad with a different picture on it.
The next day Mark ordered the new mouse pad with a picture of Edward on it. The girl is good..what can I say!
Saturday, July 18, 2009
It has to be done
I am currently having to do something that hurts my heart. Like most people I try to avoid things that hurt, but in this case I must get this done. We are in the process of setting up a special needs trust for our daughter. We need to make sure that when we are gone there will be someone to take care of her and her needs. One of the key parts of this process is a letter of intent. ( Yes I know this link is to somewhere in NY but it gives a great description of what I attempting.) Even the professionals tell the parents that this will be a very difficult process but it is one of the most important. Also you are never truly done with this, it should be updated at least once a year.
After putting it off for a couple weeks, I decided I would try to just plow through and get this done. There will be input from other people involved in Maddy's life, but I need to get the basic framework done to help guide them on what information to help me add. Most projects I just get it done in a timely and efficient manner. This project however will not be that way.
Currently I can only work on it for little chunks of time. When I begin to work on it my mind goes into thoughts and places I don't want to go. I begin to question why and did I do something wrong. I question if I have done the right things by her as she has grown up and continues to grow and mature. I play the "I should have game" and I always lose.
Most days and in most situations I am a sane and rational person and can have a conversation regarding Maddy and her needs. However when I have to spell out in specifics everything she can't or will never do, it hurts. When I have to go into detail about every medical issue and procedure she has had, it hurts. Then I become upset about things I can't change and I can't truly do what needs to be done. When I get to this point, I put it down and come back later.
This will get done and I know I will do a good job with it, but I also need to not let my mind dwell on things I can't change. My focus needs to be on her future and how this letter can make that better for her.
It will take me a few weeks and a few tears, but I will get this done.
After putting it off for a couple weeks, I decided I would try to just plow through and get this done. There will be input from other people involved in Maddy's life, but I need to get the basic framework done to help guide them on what information to help me add. Most projects I just get it done in a timely and efficient manner. This project however will not be that way.
Currently I can only work on it for little chunks of time. When I begin to work on it my mind goes into thoughts and places I don't want to go. I begin to question why and did I do something wrong. I question if I have done the right things by her as she has grown up and continues to grow and mature. I play the "I should have game" and I always lose.
Most days and in most situations I am a sane and rational person and can have a conversation regarding Maddy and her needs. However when I have to spell out in specifics everything she can't or will never do, it hurts. When I have to go into detail about every medical issue and procedure she has had, it hurts. Then I become upset about things I can't change and I can't truly do what needs to be done. When I get to this point, I put it down and come back later.
This will get done and I know I will do a good job with it, but I also need to not let my mind dwell on things I can't change. My focus needs to be on her future and how this letter can make that better for her.
It will take me a few weeks and a few tears, but I will get this done.
Wednesday, July 15, 2009
Remember When Wednesday
I am still fairly new to the blog world, but I noticed quickly that for almost any day of the week there is a theme you can use. I have not seen this yet, but I am sure it is out there somewhere. I have decided to start Remember When Wednesday and spend some time reflecting on the "Good Ole Days".
The first one is for the Dr.
1. Remember when the best water in the whole world came from straight from the water hose. Sometimes you were so thirsty you could not wait for the warm water that was sitting in the hose to run out first.
2. How about before the ATM/Pulse machine. You went to the bank drive through on Friday afternoon and they gave out the mini rolls of Lifesavers. If you did not get to the bank before the weekend, you had to make due with no money.
3. Sunday nights were all about the Wonderful World of Walt Disney followed by Mutual of Omaha's Wild Kingdom.
4. Life was not fair, you got your feelings hurt, you did not always win. You got knocked down and you learned how to stand back up again. We were better people (in most cases) for have a few hard knocks along the way.
5. When a thong was a shoe not underwear!
Hope you enjoy and feel free to add your own memories in the comments section.
The first one is for the Dr.
1. Remember when the best water in the whole world came from straight from the water hose. Sometimes you were so thirsty you could not wait for the warm water that was sitting in the hose to run out first.
2. How about before the ATM/Pulse machine. You went to the bank drive through on Friday afternoon and they gave out the mini rolls of Lifesavers. If you did not get to the bank before the weekend, you had to make due with no money.
3. Sunday nights were all about the Wonderful World of Walt Disney followed by Mutual of Omaha's Wild Kingdom.
4. Life was not fair, you got your feelings hurt, you did not always win. You got knocked down and you learned how to stand back up again. We were better people (in most cases) for have a few hard knocks along the way.
5. When a thong was a shoe not underwear!
Hope you enjoy and feel free to add your own memories in the comments section.
Monday, July 13, 2009
Sometimes you wish you had never asked
Yesterday while at my in-laws the following conversation took place. My sister-in-law had just arrived and asked what most people would consider to be an easy question.
Sister-in-law (SiL): I am thirsty can I have a bottle of water?
Mother-in-law (MiL): No, no you don't want a bottle of water, the water from my tap is filtered it is just as good.
SiL: Umm, ok, is it cold?
MiL: Well no, but you can put some ice in it. Don't worry the ice is filtered water as well from the fridge.
SiL: Can't I just use the water from the fridge if it is filtered?
MiL: No, don't do that the use the water from the tap.
SiL: *Gets glass down* Well they should be the same so I will get it from the fridge.
*Everyone has now chimed in and half are chanting fridge and the others are chanting from the tap*
SiL: Fine, fine I will get some from both
My Husband: Don't do that the water from the filter at the sink is hot water.
SiL: What?!!
MiL: *about to have a heart attack* NO, NO, that water is cold he is making that up.
SiL: Finally gets the water in the glass and sits down. *The water is in a decorative cup* EWWW this water is BROWN!
MiL: What?!! No that can not be.
Me: I think the cup is making the water look brown.
MiL: My water is white not brown, here let me get a different glass I will show you.
Me: Ummm..wouldn't white water really be no fat milk?
MiL: *Pours water into different glass* See I told you my water is not brown, it is white.
Me: I kinda think it is clear not white
MiL: Whatever
My SiL sits down to drink her white water and my MiL says.....
We have bottled water in the outside cooler.
Sister-in-law (SiL): I am thirsty can I have a bottle of water?
Mother-in-law (MiL): No, no you don't want a bottle of water, the water from my tap is filtered it is just as good.
SiL: Umm, ok, is it cold?
MiL: Well no, but you can put some ice in it. Don't worry the ice is filtered water as well from the fridge.
SiL: Can't I just use the water from the fridge if it is filtered?
MiL: No, don't do that the use the water from the tap.
SiL: *Gets glass down* Well they should be the same so I will get it from the fridge.
*Everyone has now chimed in and half are chanting fridge and the others are chanting from the tap*
SiL: Fine, fine I will get some from both
My Husband: Don't do that the water from the filter at the sink is hot water.
SiL: What?!!
MiL: *about to have a heart attack* NO, NO, that water is cold he is making that up.
SiL: Finally gets the water in the glass and sits down. *The water is in a decorative cup* EWWW this water is BROWN!
MiL: What?!! No that can not be.
Me: I think the cup is making the water look brown.
MiL: My water is white not brown, here let me get a different glass I will show you.
Me: Ummm..wouldn't white water really be no fat milk?
MiL: *Pours water into different glass* See I told you my water is not brown, it is white.
Me: I kinda think it is clear not white
MiL: Whatever
My SiL sits down to drink her white water and my MiL says.....
We have bottled water in the outside cooler.
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